John’s story

John’s story Hi, my name is John and I live with IPF, a life-threatening condition that has no cure. Seven years ago, I was diagnosed with idiopathic pulmonary fibrosis (IPF), a rare lung disease that causes irreversible scarring of the lungs and has a very low survival rate. It is estimated that 7,000 people are […]

Dealing with good days and bad days

THE GOOD DAYS & BAD DAYS By Jenni Ibrahim, L I F E Coordinator The focused discussion at the August  L I F E meeting centred on the theme of dealing with both the good days and the bad days. We asked ourselves, what makes a day either good or bad, what we did to optimise the […]

Jenni: Severe episode of pneumonia

Jenni’s story My name is Jenni Ibrahim and in 1998 after a severe episode of pneumonia, I was left in a coma fighting for my life. This year marks my 20th year of living with a chronic lung condition. It all happened so quickly. I developed a cough and thought I was coming down with […]

Let’s get physical

While most chronic lung conditions have no cure, there are things that we can do to breathe easier, keep out of hospital and improve our quality of life. One of the important ones is doing pulmonary rehabilitation. Pulmonary rehabilitation Pulmonary rehabilitation is a comprehensive program of education and exercise – and research has shown that […]