Cosimo’s story: living with IPF

Cosimo

Cosimo during a visit at the Clinical Trials Unit

I thought I had a mild form of cold or flu. I was relatively fit, so thinking back, I guess I had IPF then

Cosimo’s story

Living IPF

My name is Cosimo. I’m a husband, father, and grandfather and I live with a chronic respiratory disease.

Three years ago, I went to my GP with what I thought was a persistent cold that I couldn’t shake. He prescribed me different medications, but nothing seemed to work. He then sent me off for x-rays and this is when I was told I had idiopathic pulmonary fibrosis (IPF).

I remember in 2010 our family went to Sydney on holiday. We were walking around the Rocks, which is a very hilly area. Compared to everyone else, I was struggling to keep up; my breathing felt heavy, and I had constant phlegm. At the time, I thought I had a mild form of cold or flu. I was relatively fit, so thinking back, I guess I had IPF then.

After my diagnosis, I was referred to a Respiratory Specialist, Professor Fiona Lake, who suggested I take part in a clinical trial at the Institute for Respiratory Health. For the past 12 months, I have been on a trial that looks at the efficacy and safety of a new medication which shows potential in slowing the progression of IPF.

 

Cosimo with his family

Cosimo with his wife and grandkids

10 years ago, one of my sons tragically passed away in an accident. When we were at the hospital I was asked about organ donation. It was the last thing on my mind, but I felt if we can help why not! Now my wife and I are so happy that we were able to help someone else.

 

I guess sharing my story is along the same lines. Researchers may not find a cure within my lifetime but if I can help out in a small way, then I would without a second thought!

Click here to find out more about taking part in a clinical trial

 

Cosimo was last modified: June 25th, 2018 by Sarah Cermak

Cosimo was last modified: June 25th, 2018 by Sarah Cermak