The Glenn Brown Memorial Grant
FOR RESEARCH INTO CYSTIC FIBROSIS AND BRONCHIECTASIS
This grant is made possible by guests who attend the Annual Melbourne Cup Luncheon, generous local businesses and our amazing group of volunteers who help raise funds for cystic fibrosis research in memory of Glenn Brown. Glenn, a schoolboy from Kalgoorlie tragically lost his life due to cystic fibrosis when only 15 years of age.
The grant-in-aid of up to $50,000 for one year is made available to support: laboratory, clinical and epidemiological research into the causes, diagnosis, prevention, and treatment of cystic fibrosis and bronchiectasis.
Applications are submitted by medical, allied health professionals, nurses, scientists, students and other individuals who demonstrate that they are currently in, or are pursuing research in respiratory disease, and who are current or honorary staff and financial members of the Institute for Respiratory Health. Applicants are assessed by an independent Scientific Subcommittee of the Institute, which then makes their recommendation to the Board, who will ultimately be responsible for awarding the grant.
WHAT HAS THE GRANT ACHIEVED?
We were honoured to announce the inaugural grant in April 2011. In the past eight years, we have been able to offer $438,000 towards medical research. Each year the winner of the grant presents their findings to the attendees and donors of the Melbourne Cup Luncheon.
Naomi Chapman, Physiotherapist, Sir Charles Gairdner Hospital and Conquer CF PhD Student, Institute for Respiratory Health
Ms Chapman will investigate the Metaneb® System in the adults with cystic fibrosis, its effects during periods of clinical stability and disease exacerbation.
Professor Fergal O’Gara, Human Microbiome Programme, Curtin University and Telethon Kids Institute
Professor O’Gara conducted a pilot study in young CF children to determine if early intervention with Azithromycin can control Bile induced Pathogen Establishment.
A/Prof Graham Hall, Telethon Kids Institute
Prof Hall investigated the sensitive outcome measures for monitoring pulmonary exacerbations in young children with cystic fibrosis.
Dr Anna Tai, Respiratory Consultant, Sir Charles Gairdner Hospital
Dr Tai’s research centred on the systematic molecular surveillance of P. aeruginosa strains in patients with cystic fibrosis at Sir Charles Gairdner Hospital.
Prof Stephen Stick, Princess Margaret Hospital & Telethon Kids Institute
Prof Stick’s project assessed non-ion channel effects of the CFTR potentiator Ivacaftor for cystic fibrosis patients.
A/Prof Sue Jenkins, the Institute for Respiratory Health
A/Prof Jenkins’ used the funding for research into the facilities delivered by telehealth CF clinics (setup by the WA Department of Health) to provide adults living with CF in regional WA, access to specialist CF care without the need to travel to Sir Charlies Gairdner Hospital. The Unit will evaluate the impact of these clinics on outcomes such as quality of life, lung function and healthcare utilisation.
Dr Kathryn Ramsey, Telethon Kids Institute
Dr Ramsey’s project investigated the associations between the lung clearance index (LCI) and structural lung damage as well as respiratory infection and inflammation in preschool aged children with cystic fibrosis. By establishing a correlation between the lung clearance index and structural lung damage, this new lung function test can be used as an important tool in monitoring children with cystic fibrosis.
A/Prof Yuben Moodley, Stem Cell Research Unit, the Institute for Respiratory Health.
The funding was used to investigate the potential of stem cells to repair the lung cells in people with cystic fibrosis.
THE STORY BEHIND THE GRANT
Glenn Brown, the Kalgoorlie schoolboy with CF whose wish was never to be forgotten.
Glenn Brown was a Kalgoorlie schoolboy who battled with cystic fibrosis all of his short life. In 2003 he succumbed to the condition at just 15 years of age.
During his time in the hospital, Glenn met Janeine and Alison, who are both mothers of children with cystic fibrosis. They were so touched by his larger than life personality that when Glenn passed away, they wanted to keep his memory alive. Eight weeks later the first Melbourne Cup Luncheon was held in Glenn’s memory.
Today the Melbourne Cup Luncheon is coordinated by the Institute for Respiratory Health and is assisted by a wonderful group of volunteers.
Every dollar raised goes to funding research projects that improve the health and wellbeing of people living with cystic fibrosis and bronchiectasis. The Luncheon has raised over $438,000, funding eight life-saving research projects here in Western Australia.